I was diagnosed with Endometriosis in March of 2014. I have been dealing with the pain since I was 13. I have been ignored by doctors and the pain has been down played by family and friends. It has been hell to say the least. But I am here to tell you it doesn't have to be that way. I hope my battle and story helps you or your loved one understand this disease a little more or give you comfort in knowing there are other people just like you! I will forever fight in the battle to END ENDO!
Tuesday, July 7, 2015
EndoWoman are taking to the streets!
There are many ways you and your family can support us!!! All funds raised will be donated to The Endometriosis Foundation of America.
1. Register to walk and join us in person on the day of the event!!! https://www.raceit.com/register/groups/jointeam.aspx?event=31580 Make sure you choose team EndoWomen of Oregon
2. You can walk virtually. So that means where you are you decide that you are going to walk 5k. You can do it the day of "with" us or sometime during that week. Of course we would love to see pictures. http://causeandeventraceseries.com/virtual-run.html
3. You can donate money to the cause. We would like to raise $2000 for our cause!!! https://www.raceit.com/fundraising/fundraise.aspx?event=25465&fundraiser=13130
4. You can also follow our event on Facebook
One of our Endo Sister's has graciously offered to design, make and give shirts to all EndoWomen that are walking in person!!! We need to know your size of shirt by the end of August so these shirts can get made!!!
Registration costs are $35 and that includes a participation shirt (separate from the special endo shirt) and participation medal.
We know that some of our medical issues cause us not to be able to walk that far, please still register for the walk as there will be a lot of volunteer opportunities available for the week of the race and the day of! When someone volunteers more money will be donated to our cause!!!
Also if you would like to participate and you are in another state you can register to walk virtually and then host your own event. Remember though to follow your state and counties laws on groups of people being together!!! I always suggest using a school field!!!
If you have any questions, please contact Steffenie or myself.
Happy walking and we can't wait to see you all in October!!!! Let's make this disease known!!!
Saturday, February 21, 2015
What the EndoMarch means to ME!
Anything I can be a part of that gets the word out to at least one more person, I am going g to be there. I have suffered in silence for 20 years. I have had family members laugh at me because there was no way I could be in that much pain, it's just a period. I have had doctors that don't believe me. I have felt like crap but pushed through it because I had to be exaggerating it, noone else else seems like their insides are being torn out every month. No other woman deserves to feel like they have a cork screw digging inside them. I am a mother of a daughter and the Auntie of my nieces. They don't deserve to go through this. Through the publicity of this march I hope that we will help gain awareness for this invisible disease. No you can't see it. As my friend Steffanie said today, "if this disease were on the outside of our bodies we would look horrific." You wouldn't be able to ignore it then so why ignore it now.
I wish I had all the money in the world and could fly to Washington DC to be at this walk in person! I wish I healed faster from my surgery and could go to Palo Alto to march. It's just not feasible this year but I WILL be there next year. And I will be there in spirit, marching right along with these powerful men and women. Together we will make a difference. We will step closer to a cure. We will educate people about invisible illnesses.
Www.endomarch.org